Monday, December 5, 2011

A little discouraged


Monday, our weekly weigh in: 13 lbs 4.5oz :(

You can see, Connor lost 3 oz the past week and I have no idea why. I wanted to burst into tears as I stared at that reading on the scale! We are doing the same thing that we have been doing the past several weeks so I don't know what is going on. It if very discouraging knowing that we are trying so hard and to see weight go down. We are to go back at the end of the week and see how his weight is and that gives his pediatrician time to think about any labs.


Meanwhile, I spoke with his GI doctor. FINALLY, after I have been mentioning this medication for several months , Periactin has been introduced into Connor's regimen. Periactin is an antihistamine with the side effects of increased appetite so sometimes it is used as an appetite stimulator. He will take it every night (since it also makes them sleepy) for 2 weeks then 2 weeks off since you build a tolerance to it and it quits working. I pray that this medication helps perk Connor into eating, it will be several days before we will notice anything (that is if it works). He is also referring Connor to a doctor in Spartanburg that specializes in rare feeding issues, maybe she will give us a different insight on things.


Speech therapy has recommended we pour baby food on Connor's tray while we eat supper. Each night, Connor is slowly increasing his interest in playing with the food. It becomes VERY messy but we have to encourage a positive, fun environment when it comes to eating. He absolutely will not put his fingers in his mouth if there is food on it!! It amazes me because most of the time his hands are in his mouth! That just shows how much he does not care for food :( Hopefully over time, this will get much better and he will enjoy playing and eating his food.




Today was also Elizabeth's yearly Christmas cookies at her house. In case you forgot who Elizabeth is, she was one of Connor's amazing NICU primary nurses. Obviously Connor is a little too small for doing cookies but he sure did enjoy watching the other adorable children play. We can't wait for the Easter egg hunt that Elizabeth does at Easter...She really is amazing!! Here is a picture of them two together :)























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