Weight: 23 lbs
Height: 32.75"
As you can see, we now officially have a 2 year old! Ahhh, where did these 2 years go?! Well, he had a fabulous birthday party this past Saturday. I will make a blog entry on just the party once I receive the photos! For now I want to update on everything since the last post.
Connor got his tubes several weeks ago. His ENT was going to remove his adenoids if they were enlarged, but those weren't the issue. He also did a scope to look around while Connor was under anesthesia and discovered that his vocal cords are part of the sleep apnea issues, not his laryngomalacia. Apparently when Connor was in certain positions, the vocal cords didn't move properly which caused him to quit breathing. So our next step is for him to wear Cpap when he sleeps! :( I imagine this is going to be a huge challenge with my strong, wild, determined little boy! He has to have another sleep study so they can adjust the cpap settings to determine what works best for him. Looks like another sleepless night at the hospital for this Momma. The study is scheduled April 23rd, unless someone cancels then we can go sooner.
As for his ears, things have improved! He no longer has infections, he is babbling alot of new sounds that we have never heard, randomly tries to repeat something we say, his balance is improved slightly, his vomiting has decreased, he is putting alot more foods into his mouth, and lastly his hearing is 100% perfect now! I wish we could have gotten these tubes months ago! I am hopeful that his speech will continue to improve over time now that everything doesn't sound like he is underwater.
As far as development, he has some "quirks" that we are noticing more that he is getting older. He still tippy toe walks (forward and even mastered this walking backwards), arm flaps, doesn't really responsed to his name being called, becomes frustrated when you won't let him open and close doors or cabinets repeatedly, is full of energy (ie: running and constantly stays moving),takes 1-2 hours to calm down and go to sleep, cries at the sound of rain hitting the roof and motorized carts at the store, and many other little things. I know he has some sensory processing issues, but we are still waiting for an OT to come in our home. He also has been on a waiting list for another OT in Hartsville for over 7 months. I am anxious to get these therapies started, hoping they will help Connor tremendously. We are also on a waiting list for a developmental pediatrician who deals with preemies and developmental issues. While I talk about lists, he is also on another list for a care evaluation ( which is an Autism evaluation). He scored at high risk for autism on the M-Chat screening that his EI did. The CARE evaluation takes around 6 months to get into so we decided it wouldn't hurt to get on the list. If the time comes for the evaluation and he doesn't need it then great, but if he does then he already has a slot. We are not really sure what to make of all of his quirks: is it preemie related, due to all of his constant health battles... the list could go on and on. Regardless, we love Connor- he will always be perfect in our eyes and we are willing to do everything needed to make his life easier.
Please continue to pray for my dad and mom. Dad has his last day of radiation today in Charleston. He has completed 6 weeks of radiation and 2 rounds of chemotherapy. He has lost alot of weight, hurts pretty bad, very tired, and hates being away from home. We are hoping and praying he will be back home soon and that his recovery will go smoothly!
Ok....be on the lookout for the birthday party pictures soon! Gaby's (Kennedy's mommy) mother offered to take pics at the party since she said she needed some practice with action photos! And with 14 children running around, I hope she got plenty of action practice! ;) I can't wait to see the pictures!
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